Latest News
Number of Principal Investigators with Approval: 78.Nine additional Principal Investigators have submitted for IRB Approval.
MTAP Program Updates
This site is intended to provide the Pompe patient community and physicians with current information about MTAP including a list of MTAP approved sites by state. The site will be updated with new information on a weekly basis. If you have questions about MTAP, please contact Genzyme Medical Information at 800-745-4447 or 617-768-9000, option 2.
Download the current program updates below:
- MTAP Program Update - April 2008 added 05/01/2008
- MTAP Supply Update - January 2008 added 01/15/2008
MTAP approved sites
AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY
Hospital Name: Helen Keller Hospital
Address: 1300 South Montgomery Avenue, PO Box 610, Sheffield, AL 35660
MD Name: Laurence C. Carmichael, M.D.
Date Approved: 4-Oct-07
Hospital Name: Alaska Rehabilitation Medicine, Inc
Address: 3340 Providence Drive, Suite 370, Anchorage, Alaska 99508
MD Name: Erik Kussro, D.O.
Date Approved: 13-Feb-08
Hospital Name: Providence Cancer Center
Address: Providence Health and Services, Alaska, 3851 Piper Street, Anchorage, Alaska 99508
MD Name: Erik Kussro, D.O.
Date Approved: 13-Feb-08
Hospital Name: Phoenix Neurological Associates LTD
Address: 1331 N. 7th Street #350, Phoenix, AZ 85006
MD Name: David S. Saperstein, M.D.
Date Approved: 2-Aug-07
Hospital Name: Neuromuscular Research Center
Address: 10200 N. 92nd St., Suite 101, Scottsdale, AZ 85258
MD Name: Kumaraswamy Sivakumar, M.D.
Date Approved:6-Sep-07
Hospital Name: Yavapi Regional Medical Center
Address: YRMC Medical Staff Services 1003 Willow Creek Road, Prescott, AZ 86301
MD Name: Gail Mizner, M.D.
Date Approved: 19-Sept-07
Hospital Name: Arizona Cancer Center at UMC North
Address: 3838 N Campbell Ave., Tuscon, AZ 85719
MD Name: Katalin Scherer, M.D.
Date Approved: 17-Jan-08
Hospital Name: UCLA
Address: Los Angeles, CA
MD Name: Stephen Cederbaum, M.D.
Date Approved: 29-Feb-08
Hospital Name: Tower Hematology Oncology Medical Group, Tower Cancer Research Foundation
Address: 9090 Wilshire Boulevard, Suite 200, Beverly Hills, CA 90211-1850
MD Name: Barry Rosenbloom, M.D.
Date Approved: 13-Sep-07
Hospital Name: Comprehensive Blood and Cancer Center
Address: 6501 Truxton Avenue, Bakersfield, CA 93309
MD Name: Ravi Patel, M.D.
Date Approved: 18-Sept-07
Hospital Name: Faculty Physicians & Surgeons of Loma Linda University School of Medicine
Address: Department of Neurology, 11370 Anderson Street, Suite 2400, Loma Linda, CA 92354
MD Name: Rodolfo Ong Escutin, M.D.
Date Approved: 12-Sep-07
Hospital Name: Loma Linda University
Address: Loma Linda University Medical Center, 11234 Anderson Street, Loma Linda, CA 92354
MD Name: Rodolfo Ong Escutin, M.D.
Date Approved: 12-Sep-07
Hospital Name: Stanford University
Address: Ambulatory Treatment Infusion Center, 300 Pasteur Drive, H-1134, Stanford, CA 94305
MD Name: Gregory Enns, M.D.
Date Approved: 18-Dec-07
Hospital Name: Kaiser Permanente
Address: 1650 Response Road, Sacramento, CA 95815
MD Name: Mark Lipson, M.D.
Date Approved: 18-Dec-07
Hospital Name: Kaiser Permanente
Address: 2025 Morse Ave., Sacramento, CA 95825
MD Name: Mark Lipson, M.D.
Date Approved: 18-Dec-07
Hospital Name: University of California, Irvine Medical Center
Address: UCI Medical Center Infusion Center, 101 The City Drive, Orange, CA 92868
MD Name: Virginia Kimonis, M.D.
Date Approved: 5-Feb-08
Hospital Name: Southern California Permanente Medical Group, Regional Metabolic Center
Address: 4700 Sunset Blvd., First Floor, Los Angeles, CA 90027
MD Name: Rebecca Mardach, M.D.
Date Approved: 19-Feb-08
Hospital Name: UCSD Clinical Research Center
Address: UCSD Medical Center, 200 Arbor Drive, Mail Code 8467, San Diego, CA 92103
MD Name: Bruce Barshop, M.D.
Date Approved: 06-Mar-08
Hospital Name: University of Colorado at Denver Health Sciences Center
Address: 12605 E. 16th Ave., Aurora, CO 80045
MD Name: Matthew Taylor, M.D.
Date Approved: 15-Jan-08
Hospital Name: Children's National Medical Center
Address: 111 Michigan Ave. NW, Washington. DC 20010-2970
MD Name: Cynthia Tifft, M.D.
Date Approved: 19-Sept-07
Hospital Name: Blake Medical Center
Address: 5955 17th Avenue West, Bradenton, FL 34209
MD Name: Peter Fort, M.D.
Date Approved: 7-Aug-07
Hospital Name: University Research Foundation for Lysosomal Storage Diseases
Address: 8170 Royal Palm Boulevard, Coral Springs, FL 33065
MD Name: Neal Weinreb, M.D.
Date Approved: 25-Sep-07
Hospital Name: Halifax Medical Center
Address: Herbert D. Kerman Regional Oncology Center, 303 N. Clyde Morris Blvd., Daytona Beach, FL 32114
MD Name: Ruby Anne Deveras, M.D.
Date Approved: 24-Dec-07
Hospital Name: St. Anthony's Hospital
Address: 1200 Seventh Avenue North, St. Petersburgh, FL 33705
MD Name: Michael Franklin, M.D.
Date Approved: 17-Jan-08
Hospital Name:Emory University School of Medicine, Division of Medical Genetics
Address: 2165 North Decatur Road, Decatur, GA 30033
MD Name: Paul M. Fernhoff, M.D.
Date Approved: 20-Jun-07
Hospital Name: Children's Memorial Hospital
Address: 2300 Children's Plaza, Chicago, IL 60614
MD Name: Joel Charrow, M.D.
Date Approved: 16-Jul-07
Hospital Name: Riverside Medical Center
Address: 500 North Wall St. Ste 400, Kankakee, IL 60901
MD Name: Paul Wong, M.D.
Date Approved: 7-Aug-07
Hospital Name: Oncology Hematology Associates of SW Indiana (OHA)
Address: 3801 Bellemeade Avenue, Suite 110, Evansville, IN 47714
MD Name: Edward P. Fox, M.D.
Date Approved: 14-Aug-07
Hospital Name:University of Iowa Hospitals and Clinics
Address: Department of Pediatrics W133 GH, 200 Hawkins Drive, Iowa City, IA 52242
MD Name: Sara Copeland, M.D.
Date Approved: 24-Aug-07
Hospital Name: University of Kansas Medical Center, General Clinical Research Center
Address: 3901 Rainbow Boulevard, Kansas City, KS 66160
MD Name: Richard Barohn, M.D.
Date Approved: 1-Jan-08
Hospital Name: University of Kansas Medical Center, Landon Center on Aging
Address: 3599 Rainbow Boulevard, Kansas City, KS 66160
MD Name: Richard Barohn, M.D.
Date Approved:18-Jan-08
Hospital Name: Baptist Hospital East
Address: 400 Kresge Way, Louisville, KY 40207
MD Name: Gregory Pittman, M.D.
Date Approved: 1-Feb-08
Hospital Name: LSU Health Sciences Center at Shreveport
Address: 1501 Kings Highway, Shreveport, LA 71103
MD Name: Roger E. Kelley, M.D.
Date Approved: 30-Jul-07
Hospital Name: Ochsner Clinic Foundation
Address: 1514 Jefferson Highway, New Orleans, LA 70121
MD Name: Stephen Kantrow, M.D.
Date Approved: 10-Jan-08
Hospital Name: Youville Hospital
Address: 1575 Cambridge St., Cambridge, MA 02138
MD Name: Melvyn Hecht, MD
Date Approved: 02-Mar-08
Hospital Name:The Cancer Center of Boston
Address: 15 Caswell Lane, Plymouth, MA 02360
MD Name: Murray Bern, M.D.
Date Approved: 12-Jun-07
Hospital Name: New England Baptist Hospital, Parker Hill Oncology & Hematology, P.C.
Address: 125 Parker Hill Aveune, Suite 385, Boston, MA 02120
MD Name: Zachary Spigelman, M.D.
Date Approved: 10-Oct-07
Hospital Name: Baystate Medical Center
Address: 759 Chestnut Street, Springfield, MA 01199
MD Name: Mary Alice Abbott, M.D.
Date Approved:
Hospital Name: University of Maryland Hospital
Address: 22 S. Greene St., Baltimore, MD 21201-1595
MD Name: Elizabeth Streeten, M.D.
Date Approved:
Hospital Name: Helen DeVos Children's Hospital
Address: 100 Michigan NE, Grand Rapids, MI 49503
MD Name: David Dickens, M.D.
Date Approved: 5-Sep-07
Hospital Name: Lakeland Regional Hospital
Address: 1234 Napier Avenue, St. Joseph, MI 49085
MD Name: Robert C. Ward, D.O.
Date Approved: 10-Oct-07
Hospital Name: Mary Jo Voelpel, D.O
Address: 2659 South Lapeer Road, Suite B, Lake Orion MI, 48360
MD Name: Mary Jo Voelpel, D.O
Date Approved: 18-Sept-07
Hospital Name: Infusion Associates
Address: 3230 Eagle Park Drive, Grand Rapids, MI 49525
MD Name: Khan Nedd, M.D.
Date Approved: 17-Oct-07
Hospital Name: Cancer Care Associates
Address: 1701 South Boulevard East, Suite 350, Rochester Hills, MI 48307
MD Name: R. Scott Lazzara, M.D.
Date Approved: 13-Nov-07
Hospital Name: Harper University Hospital
Address: 4201 St. Anotine, 8A-UHC, Detroit, MI 48201
MD Name: Michael Shy, M.D.
Date Approved: 11-Jan-08
Hospital Name:Fairview University Medical Center
Address: 420 Delaware Street SE, Minneapolis, MN 55455
MD Name: John W. Day M.D. PhD
Date Approved: 12-Dec-07
Hospital Name: Guardian Oncology and Center for Wellness
Address: 2835 Fort Missoula Road, Suite 301, Missoula, MT 59804
MD Name: Judy Schmidt, M.D.
Date Approved: 26-Oct-07
Hospital Name: BryanLGH Medical Center East
Address: 1600 South 48th Street, Lincoln, NE 68506
MD Name: Gary Pattee, M.D.
Date Approved: 28-Jan-08
Hospital Name: University of Nebraska Medical Center
Address: Munroe-Meyer Institute, 985450 Nebraska Medical center, Omaha, NE 68198-5450
MD Name: G. Bradley Schaefer, M.D.
Date Approved: 7-Apr-08
Hospital Name: University of Nebraska Medical Center
Address: Lied Transplant Center, 7600 Nebraska Medical Center, Omaha, NE 68198-7600
MD Name: G. Bradley Schaefer, M.D.
Date Approved: 7-Apr-08
Hospital Name:The Valley Hospital
Address: 223 N. Van Dien Avenue, Ridgewood, New Jersey 07450
MD Name: Stephen C. Jacoby, M.D.
Date Approved: 22-May-07
Hospital Name: Ocean County Family Care
Address: 2290 West County Line Road, Jackson, NJ 08527
MD Name: Neil Brodsky, M.D.
Date Approved: 5-Feb-08
Hospital Name: Kimball Medical Center
Address: 600 River Avenue, Lakewood, NJ 08701
MD Name: Neil Brodsky, M.D.
Date Approved: 5-Feb-08
Hospital Name: Presbyterian Infusion Center
Address: 201 Cedar SE, Suite 4620, Albuquerque, NM 87106
MD Name: Joe Lee, M.D.
Status: 13-Mar-08
Hospital Name:New York University Medical Center
Address: 550 First Avenue, New York, NY 10016
MD Name: Gregory Pastores, M.D.
Date Approved: 19-Jun-07
Hospital Name: Albany Medical College
Address: Neurology Department MC-10, 47 New Scotland Avenue, Albany, NY 12208
MD Name: Matthew Murnane, M.D.
Date Approved: 16-Aug-07
Hospital Name: Guthrie Clinic
Address: 130 Centerway, Corning, NY 14830
MD Name: Louis R. Dubois, M.D.
Date Approved: 12-Sep-07
Hospital Name: Northshore Hematology-Oncology
Address: 1201 Northern Boulevard, Manhasset, NY 11030
MD Name: Richard Forte, M.D.
Date Approved: 14-Feb-08
Hospital Name: Duke University Medical Center, Division of Pediatrics and Medical Genetics
Address: Box 3528, Trent Drive, Bell Building, Room 237, Durham, NC 27710
MD Name: Priya Kishnani, M.D.
Date Approved: 17-Aug-07
Hospital Name: Onslow Memorial Hospital
Address: 317 Western Blvd., Jacksonville, NC 28541
MD Name: Clarence Ballenger, M.D.
Date Approved: 1-Feb-08
Hospital Name: Coastal Neurological Associates, P.A.
Address: 227 Memorial Drive, Jacksonville, NC 28546
MD Name: Clarence Ballenger, M.D.
Date Approved: 1-Feb-08
Hospital Name: MetroHealth Medical Center, GCRC
Address: 2500 MetroHealth Drive, Cleveland, OH 44109-1998
MD Name: Garey Noritz, M.D.
Date Approved: 22-Aug-07
Hospital Name: Cincinnati Children's Hospital Medical Center
Address: 3333 Burnet Avenue, E-5, ML-4006, Cincinnati, OH 45229-3039
MD Name: Nancy D. Leslie, M.D.
Date Approved:1-Sep-07
Hospital Name: Wayne Hospital
Address: 835 Sweitzer St., Greenville, OH 45331
MD Name: Doug Riffell, M.D.
Date Approved:8-Sep-07
Hospital Name: St. Vincent Mercy Medical Center
Address: 2213 Cherry St., Toledo, OH 43608
MD Name: James Tita, M.D.
Date Approved: 14-Sep-07
Hospital Name: Respiratory Specialists, Inc.
Address: 2222 Cherry Street, Suite 1400, Toledo, OH 43608
MD Name: James Tita, M.D.
Date Approved: 14-Sep-07
Hospital Name: ID Clinical Research Ltd.
Address: 2409 Cherry St. #203, Toledo, OH 43608
MD Name: James Tita, M.D.
Date Approved: 14-Sep-07
Hospital Name: Regency Hospital of Toledo
Address: 5220 West Alexis Road, Sylvania, OH 43560
MD Name: James Tita, M.D.
Date Approved: 14-Sep-07
Hospital Name: INTEGRIS Baptist Hospital
Address: 3300 NW Expressway, Oklahoma City, OK 73112
MD Name: Brent Beson, M.D.
Date Approved: 13-Nov-07
Hospital Name: Saint Francis Hospital
Address: 6161 South Yale, Tulsa, OK 74136
MD Name: Michael Kayser, M.D.
Date Approved: 8-Nov-07
Hospital Name: Saint Francis Hospital Outpatient Infusion Center
Address: 4606 East 67th Street, Tulsa, OK 74136
MD Name: Michael Kayser, M.D.
Date Approved: 8-Nov-07
Hospital Name: Warren Cancer Research Foundation
Address: 6465 South Yale #707, Tulsa OK 74136
MD Name: Michael Kayser, M.D.
Date Approved: 8-Nov-07
Hospital Name: Continue Care Infusion
Address: 6600 South Yale #110, Tulsa, OK 74136
MD Name: Michael Kayser, M.D.
Date Approved: 8-Nov-07
Hospital Name: Warren Cancer Research Foundation
Address: 6465 South Yale #707, Tulsa OK 74136
MD Name: Michael Kayser, M.D.
Date Approved: 8-Nov-07
Hospital Name: Cancer Care Associates
Address: 6475 S. Yale Avenue, Suite 201, Tulsa, OK 74136
MD Name: Mark Olsen, M.D.
Date Approved: 7-Feb-08
Hospital Name: Oregon Health and Science University, Department of Neurology
Address: 3181 SW Sam Jackson Park Rd., L-226, Portland, OR 97239-3098
MD Name: Edward Cupler, M.D.
Date Approved: 5-Jul-07
Hospital Name: University of Pennsylvania School of Medicine
Address: 3400 Spruce Street, 538 Maloney Building, Philadelphia, PA 19104
MD Name: Reed Pyeritz, M.D., PhD
Date Approved: 18-Sept-07
Hospital Name: The Children's Hospital of Philadelphia
Address: 34th Street & Civic Center Blvd, Philadelphia, PA 19104
MD Name: Richard Finkel, M.D.
Date Approved: 22-Jan-08
Hospital Name: Arlington Memorial Hospital
Address: 800 W. Randol Mill Road, Arlington, TX 76102
MD Name: Robert McMichael, M.D.
Status: 18-Dec-07
Hospital Name: McKinney Family Healthcare, LP
Address: 4510 Medical Center Drive, Suite 210, McKinney, TX 75069
MD Name: N. Christopher Lawrence, M.D.
Date Approved: 3-Oct-07
Hospital Name: Providence Health Center
Address: 6901 Medical Parkway, Waco, TX 76712
MD Name: Mark Schwartze
Date Approved: 13-Nov-07
Hospital Name: Baylor College of Medicine
Address: Dept of Molecular and Human Genetics, One Baylor Plaza NAB 2015, Houston, TX 77030
MD Name: Christine Eng, M.D.
Date Approved: 14-Nov-07
Hospital Name: Texas Children's Hospital
Address: 6621 Fannin, WT 4th Floor Infusion Center, Houston, TX 77030
MD Name: Christine Eng, M.D.
Date Approved: 14-Nov-07
Hospital Name: University of Utah Hospital
Address: Huntsman General Clinical Research Center, 50 North Medical Drive, Salt Lake City, UT 84132
MD Name: Nicola Longo, M.D.
Date Approved: 15-Aug-07
Hospital Name: Winchester Medical Center
Address: 1840 Amherst Street, Winchester, VA 22601
MD Name: William Brink, M.D.
Date Approved: 3-Oct-07
Hospital Name:Riverside Internal Medicine
Address: 12420 Warwick Blvd., Building 3, Suite 4A, Newport News, VA 23606
MD Name: James C. Spiller, M.D.
Date Approved: 14-Aug-07
Hospital Name: University of Virginia Hospital
Address: University of Virginia Hospital, Charlottesville, VA 22908
MD Name: William G. Wilson, M.D.
Date Approved: 12-Jun-07
Hospital Name: Virginia Commonwealth University Health System
Address: 1200 East Marshall Street, Richmond, VA 23298
MD Name: Usha Sundaram, M.D.
Date Approved: 15-Oct-07
Hospital Name: Tidewater Kidney Associates
Address: 745 N. Battlefield Blvd. Chesapeake, VA 23320
MD Name: Joel Bundy, M.D.
Date Approved: 5-Dec-07
Hospital Name: Tidewater Kidney Associates
Address: 1157 First Colonial Rd. #200, Virginia Beach, VA 23320
MD Name: Joel Bundy, M.D.
Date Approved: 5-Dec-07
Hospital Name: University Washington Medical Center
Address: Special Procedures Unit, 4 South, 1959 NE Pacific Street, Seattle, WA 98195
MD Name: C. Ronald Scott, M.D.
Date Approved: 21-Sep-07
Hospital Name: Pullman Regional Hospital
Address: 835 SE Bishop Boulevard, Suite 200, Pullman, WA 99163
MD Name: Stephen Hall, M.D.
Date Approved: 11-Oct-07
Hospital Name: University Health Associates, West Virginia University Eye Institute
Address: Neurology Suite, Third Floor, 1 Stadium Drive, Morgantown, WV 26506
MD Name: Ludwig Gutmann, M.D.
Date Approved: 16-Feb-08
Hospital Name: Mary Babb Randolph Cancer Center, West Virginia University
Address: 1 Medical Center Drive, PO Box 9300, Morgantown WV, 26506
MD Name: Ludwig Gutmann, M.D.
Date Approved: 16-Feb-08
Hospital Name: Prevea Clinic - Allouez Site
Address: 1821 S. Webster Ave., Green Bay, WI 54301
MD Name: Terence Edgar, M.D.
Date Approved: 9-Jul-07
Hospital Name: St. Vincent Hospital
Address: 835 S. Van Buren St., Green Bay, WI 54301
MD Name: Terence Edgar, M.D.
Date Approved: 9-Jul-07
Sites that have submitted for IRB approval
The following sites are currently in the process of implementing MTAP and are waiting for IRB approval to begin enrolling patients.
If your treatment site is not listed, please contact your physician or Genzyme for more information.
Hospital Name: University of Illinois, Chicago
Address: Chicago, IL
MD Name: Julie Rowin, M.D.
Status: Pending Approval
Hospital Name: St. Luke's Boise/Meridian
Address: 190 East Bannock St., Boise, ID 83712
MD Name: Robert Friedman, M.D.
Status: Pending Approval
Hospital Name: University of Florida General Clinical Research Center
Address: 1600 SW Archer Rd., Gainesville, FL 32610
MD Name: Barry Byrne, M.D.
Status: Pending Approval
Hospital Name: UC Davis Medical Center
Address: Sacramento, CA
MD Name: Bilur Moghaddam, M.D.
Status: Pending Approval
Hospital Name: Maine General Medical Center
Address: 6 E. Chestnut St., Augusta, ME 04330
MD Name: Lee A. Baggott, M.D.
Status: Pending Approval
Hospital Name: Kaweah Delta Hospital
Address: 400 W. Mineral King, Visalia, CA 93291
MD Name: Zoltan Mocsary, M.D.
Status: Pending Approval
Hospital Name: University of Pittsburgh
MD Name: Paula Clemens, M.D.
Status: Pending Approval
Hospital Name: Vanderbilt University Medical Center
MD Name: Debra Freedenberg, MD
Status: Pending Approval
Hospital Name: Mt. Sinai School of Medicine
Address: New York City, NY
MD Name: Dale Lange, MD
Status: Pending Approval
Hospital Name: Children's Hospital of Central California
MD Name: Susan Winter, MD
Status: Pending Approval
Terms and Conditions of Use | Privacy Policy
This site is intended for United States residents only.
© 2007 Genzyme Corporation. All rights reserved. | MZ/US/P090a/04/08
